Tr\u00e8s touch\u00e9\u00a0par le sort du jeune Joseph, \u00e2g\u00e9 de 3 ans et atteint d\u2019une leuc\u00e9mie n\u00e9cessitant une greffe d\u2019urgence, le s\u00e9nateur des Vosges Jean Hingray a remis en lumi\u00e8re, lors de la s\u00e9ance des Questions Au Gouvernement du 19 janvier dernier, la trop faible notori\u00e9t\u00e9 dont souffre le don de moelle osseuse interpellant avec \u00e9motion et d\u00e9termination Monsieur le secr\u00e9taire d\u2019\u00c9tat Secr\u00e9taire d\u2019\u00c9tat aupr\u00e8s du ministre des Solidarit\u00e9s et de la Sant\u00e9, charg\u00e9 de l\u2019Enfance et des Familles.\u00a0<\/strong><\/span><\/h2>\n<\/p>\n
En voici le texte int\u00e9gral\u00a0de l\u2019intervention :<\/p>\n
\u00ab\u00a0Joseph, 3 ans, est atteint d\u2019une leuc\u00e9mie. Plus de 100 jours d\u2019hospitalisation, 793 s\u00e9ances de chimioth\u00e9rapie, 1 chance sur 1 million de gu\u00e9rir. Courageux face \u00e0 la maladie, tout comme sa famille, ce petit gar\u00e7on est depuis quelques jours au c\u0153ur de l\u2019actualit\u00e9. Alors que le processus m\u00e9dical touchait \u00e0 sa fin et qu\u2019on esp\u00e9rait une issue heureuse, le petit Joseph a fait une rechute. Les parents, d\u00e9sesp\u00e9r\u00e9s, lancent un appel aux donneurs de moelle osseuse via les r\u00e9seaux sociaux. Sans ce don, Joseph ne survivra pas. Cet appel a largement \u00e9t\u00e9 repris par les m\u00e9dias. Monsieur le secr\u00e9taire d\u2019\u00c9tat, \u00e0 votre tour, allez-vous le relayer avec les moyens de la puissance publique ?<\/em><\/p>\nAu-del\u00e0 du drame v\u00e9cu par Joseph et sa famille, cette question pose le probl\u00e8me de la raret\u00e9 des donneurs volontaires inscrits au registre international d\u00e9di\u00e9. La p\u00e9nurie est end\u00e9mique : l\u2019Agence de la biom\u00e9decine recherche en permanence de nouveaux donneurs. Certains freins administratifs sont incompr\u00e9hensibles : alors que l\u2019on peut donner sa moelle osseuse jusqu\u2019\u00e0 60 ans, on ne peut s\u2019inscrire sur ce registre qu\u2019entre 18 et 35 ans. Pourquoi pas plus tard, alors que c\u2019est le cas dans d\u2019autres pays ? Mais le principal obstacle au d\u00e9veloppement du fichier des donneurs est le manque d\u2019information. Les gens ignorent l\u2019\u00e9tendue des besoins et de nombreuses id\u00e9es re\u00e7ues perdurent. \u00c0 titre d\u2019exemple, pour \u00eatre inscrit dans le fichier des donneurs, il suffit de proc\u00e9der \u00e0 un pr\u00e9l\u00e8vement salivaire ou sanguin. <\/em><\/p>\nMonsieur le secr\u00e9taire d\u2019\u00c9tat, le Gouvernement va-t-il prendre les mesures n\u00e9cessaires pour, enfin, faciliter le don de moelle osseuse et lancer une campagne d\u2019information pour d\u00e9velopper le fichier des donneurs ?\u00a0\u00bb\u00a0<\/em><\/p>\nDans sa r\u00e9ponse, le ministre Adrien Taquet a notamment rappel\u00e9 le contexte et le r\u00f4le central du site internet www.dondemoelleosseuse.fr. Retrouvez les deux prises de parole ici :\u00a0S\u00e9ance publique du 19 janvier 2022 (apr\u00e8s-midi) (senat.fr)<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"Tr\u00e8s touch\u00e9\u00a0par le sort du jeune Joseph, \u00e2g\u00e9 de 3 ans et atteint d\u2019une leuc\u00e9mie n\u00e9cessitant une greffe d\u2019urgence, le […]<\/p>\n","protected":false},"author":44,"featured_media":23556,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[460,10,4152,13,18],"tags":[10056,3801,3570],"acf":[],"yoast_head":"\n
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