![\"flyer_generation22-page-001](\"\/2018\/10\/flyer_generation22-page-001-Copie_LI.jpg\")
<\/a><\/p>\nLe spectacle a lieu le vendredi 16 novembre 2018 , \u00e0 la MCL de G\u00e9rardmer, \u00e0 20h30. Le tarif est de 20 Euros. La totalit\u00e9 des entr\u00e9es sera revers\u00e9e \u00e0 l\u2019Association G\u00e9n\u00e9ration 22.\u00a0 Une buvette sera aussi organis\u00e9e sur place au profit\u00a0 de la m\u00eame cause.
\n<\/span><\/p>\nR\u00e9servation \u00e0 la MCL de G\u00e9rardmer au 03 29 63 11 96.<\/span><\/p>\nNote : de Sandra Poirot (organisatrice de la soir\u00e9e) maman de la petite Carla<\/strong><\/p>\nG\u00e9n\u00e9ration 22 \u00a0est la seule association nationale et c\u2019est avant une histoire d\u2019hommes et de femmes qui luttent dans un esprit collectif contre une maladie g\u00e9n\u00e9tique rare appel\u00e9e la microd\u00e9l\u00e9tion22q11. Ma fille , \u00e2g\u00e9e de 13ans, est atteinte de cette maladie rare . Celle-ci entraine une multitude de sympt\u00f4mes dont les plus fr\u00e9quents sont des probl\u00e8mes de langage, un syst\u00e8me immunitaire d\u00e9ficient, des troubles psychiques , des troubles comportementaux ,des difficult\u00e9s scolaires , des \u00e9normes difficult\u00e9s d\u2019insertion sociale et professionnelle et des malformations cardiaques.<\/span><\/em><\/p>\nLa recherche de fonds est essentielle afin de faire avancer la recherche sur notre maladie rare, soutenir les parents gr\u00e2ce \u00e0 la mise en place de groupes de parole entour\u00e9s par des psychologues qui connaissent notre syndrome et surtout permettre d\u2019informer et de communiquer aux familles adh\u00e9rentes les meilleures prises en charge possibles pour leurs enfants.<\/span><\/em><\/p>\n","protected":false},"excerpt":{"rendered":"Le spectacle a lieu le vendredi 16 novembre 2018 , \u00e0 la MCL de G\u00e9rardmer, \u00e0 20h30. Le tarif est […]<\/p>\n","protected":false},"author":1,"featured_media":37327,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[20,25,12],"tags":[],"acf":[],"yoast_head":"\n
Claude Vanony en soutien \u00e0 G\u00e9n\u00e9ration 22 - Gerardmer Info<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Claude Vanony en soutien \u00e0 G\u00e9n\u00e9ration 22 - Gerardmer Info\" \/>\n<meta property=\"og:description\" content=\"Le spectacle a lieu le vendredi 16 novembre 2018 , \u00e0 la MCL de G\u00e9rardmer, \u00e0 20h30. 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