![\"Relise](\"\/2016\/11\/P1070573.jpg\")
<\/a>Remise du ch\u00e8que de 400 \u20ac en faveur de G\u00e9n\u00e9ration 22<\/strong><\/span><\/p><\/div>\nDepuis plusieurs ann\u00e9es le Comit\u00e9 de la Trace Vosgienne VTT et ski de fond, par le biais de Fran\u00e7is Kientzy et Francisco Sanchez, se mobilisent avec et pour l\u2019association G\u00e9n\u00e9ration 22 repr\u00e9sent\u00e9e \u00e0 G\u00e9rardmer et l’Est de la France par Sandra Poirot. La maman de Carla a re\u00e7u des mains des responsables de l’\u00e9preuve sportive un ch\u00e8que de 400 \u20ac correspondant \u00e0 une coparticipation de 0,50cts d’\u20ac par dossard enregistr\u00e9 lors de l’\u00e9preuve qui s’est d\u00e9roul\u00e9e l’\u00e9t\u00e9 dernier. C’est une somme cons\u00e9quente qui vient subvenir aux besoins de l’association sachant que les frais d’organisation sont consid\u00e9rables. Comme le soulignait Sandra Poirot, le tableau clinique, bien que diff\u00e9rent pour chaque cas, a des sympt\u00f4mes crois\u00e9s.<\/p>\nPour info compl\u00e9mentaire, le syndr\u00f4me de d\u00e9l\u00e9tion 22q11.2 est une anomalie chromosomique cong\u00e9nitale, caract\u00e9ris\u00e9e le plus souvent par des malformations cardiaques et palatines, une dysmorphie faciale, un retard du d\u00e9veloppement et une immunod\u00e9ficience.<\/span><\/section>\nLa pr\u00e9valence mondiale est estim\u00e9e entre 1\/2000 et 1\/4000 naissances .<\/span><\/section>\n","protected":false},"excerpt":{"rendered":"Depuis plusieurs ann\u00e9es le Comit\u00e9 de la Trace Vosgienne VTT et ski de fond, par le biais de Fran\u00e7is Kientzy […]<\/p>\n","protected":false},"author":1,"featured_media":22598,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[20,17],"tags":[],"acf":[],"yoast_head":"\n
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