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{"id":19446,"date":"2016-05-28T16:57:38","date_gmt":"2016-05-28T14:57:38","guid":{"rendered":"https:\/\/vi.si-developpement.fr\/gerardmerinfo\/2016\/05\/lyme-frontieres-combat-ne-commencer\/"},"modified":"2016-05-28T16:57:38","modified_gmt":"2016-05-28T14:57:38","slug":"lyme-frontieres-combat-ne-commencer","status":"publish","type":"post","link":"https:\/\/vi.si-developpement.fr\/gerardmerinfo\/2016\/05\/lyme-frontieres-combat-ne-commencer\/","title":{"rendered":"Lyme sans Fronti\u00e8res : le combat ne fait que commencer"},"content":{"rendered":"

<\/iframe><\/p>\nManque de fiabilit\u00e9 des tests de d\u00e9pistage, manque de suivi des malades, manque de pr\u00e9vention sur les territoires les plus touch\u00e9s, la maladie de Lyme commence \u00e0 faire tr\u00e8s mal et il est grand temps de se mobiliser.<\/strong><\/p>\n<div id=\"attachment_84472\" style=\"width: 350px\" class=\"wp-caption alignright\"><a href=\"\/2016\/05\/Marche-Lyme-Sans-fronti\u00e8res-G\u00e9rardmer-5.jpg\"><img aria-describedby=\"caption-attachment-84472\" decoding=\"async\" loading=\"lazy\" class=\"wp-image-84472 size-medium\" src=\"\/2016\/05\/Marche-Lyme-Sans-fronti\u00e8res-G\u00e9rardmer-5-340x255.jpg\" alt=\"Marie-Claude Perrin, pr\u00e9sidente de Lyme sans Fronti\u00e8res\" width=\"340\" height=\"255\" \/><\/a>Marie-Claude Perrin, pr\u00e9sidente de Lyme sans Fronti\u00e8res<\/span><\/p><\/div>\nC’\u00e9tait en effet une grande premi\u00e8re en perle des Vosges o\u00f9 l’association \u00ab\u00a0Lyme sans Fronti\u00e8res\u00a0\u00bb organisait une marche sur l’esplanade du lac dans le cadre de la journ\u00e9e de protestation internationale \u00a0contre les maladies vectorielles \u00e0 tiques, le \u00ab\u00a0Lyme Protest\u00a0\u00bb . <\/strong>Pr\u00e9cisons tout d’abord que cette association d\u2019envergure nationale est fortement implant\u00e9e dans les Vosges et dans le secteur Nord-Est qui est l’un des plus touch\u00e9s par ce type de maladies et notamment celle de Lyme. Une maladie encore consid\u00e9r\u00e9e comme rare en France o\u00f9 l’on tarde, semble-t-il, \u00e0 prendre le probl\u00e8me \u00e0 bras-le-corps, voire au s\u00e9rieux. C’est en tout cas l’avis des manifestants du jour.<\/p>\n\u00ab\u00a0Le premier test de d\u00e9pistage, le test \u00c9lisa, n’est pas fiable \u00e0 50%, la quasi totalit\u00e9 du corps m\u00e9dical le reconna\u00eet d\u00e9sormais. Il revient une fois sur deux n\u00e9gatif sur des personnes qui sont pourtant positives. Et ensuite, il n’y a pas de test de confirmation. Il y a vraiment un sous-diagnostique de la maladie. Les malades ne sont souvent pas pris en charge car c’est une vraie gal\u00e8re de trouver des m\u00e9decins comp\u00e9tents en la mati\u00e8re. Ils sont g\u00e9n\u00e9ralement\u00a0 peu form\u00e9s sur cette maladie et ceux qui cherchent \u00e0 approfondir leurs connaissances sur le sujet, proposer des solutions, peuvent \u00eatre inqui\u00e9t\u00e9s par l’ordre des m\u00e9decins et la Caisse d’Assurance Maladie. Il y a une vraie chasse aux sorci\u00e8res ! Des m\u00e9decins sont m\u00eame menac\u00e9s d’\u00eatre suspendus\u00a0\u00bb , explique la pr\u00e9sidente de Lyme Sans Fronti\u00e8res ,Marie-Claude Perrin.<\/p>\n<a href=\"\/2016\/05\/Marche-Lyme-Sans-fronti\u00e8res-G\u00e9rardmer-1.jpg\"><img decoding=\"async\" loading=\"lazy\" class=\"alignleft size-medium wp-image-84473\" src=\"\/2016\/05\/Marche-Lyme-Sans-fronti\u00e8res-G\u00e9rardmer-1-340x255.jpg\" alt=\"Marche Lyme Sans fronti\u00e8res G\u00e9rardmer (1)\" width=\"340\" height=\"255\" \/><\/a>Elle m\u00eame touch\u00e9e par la maladie et diagnostiqu\u00e9e tardivement, la Vosgienne sait de quoi elle parle et a d\u00e9cid\u00e9 de r\u00e9agir. Elle poursuit : \u00ab\u00a0Il y a d\u00e9sormais une p\u00e9tition pour d\u00e9fendre ces m\u00e9decins et nous nous battons pour la libert\u00e9 de prescription et la r\u00e9vision du consensus de soin de la maladie qui date de 2006. Mais surtout, une action juridique baptis\u00e9e \u00ab\u00a0LymAction\u00a0\u00bb a \u00e9t\u00e9 lanc\u00e9e avec l’aide de deux avocats du barreau d\u2019\u00c9pinal. 70 malades d\u00e9posent plainte contre le laboratoire BioM\u00e9rieux qui produit le test en question, puis contre l\u2019\u00c9tat. L’objectif est dans un premier temps d’indemniser les malades qui ont \u00e9t\u00e9 diagnostiqu\u00e9s tardivement. Il faut que la maladie de Lyme chronique soit reconnue et que cela fasse bouger les choses !\u00a0\u00bb<\/p>\nLes choses, justement, sont donc claires avec Lyme sans Fronti\u00e8res dont les membres et leur pr\u00e9sidente semblent bien d\u00e9termin\u00e9s \u00e0 faire ce qu’il faut pour combattre la maladie et une certaine forme d’immobilisme de la part des \u00ab\u00a0autorit\u00e9s comp\u00e9tentes\u00a0\u00bb . Des tests fiables, des moyens pour la recherche, plus de pr\u00e9vention, il y a beaucoup \u00e0 faire et le combat ne fait que commencer. L’association va multiplier les actions et peut compter sur un parrain prestigieux et reconnu : le professeur Luc Montagnier, Prix Nobel de physiologie & m\u00e9decine en 2008. Ce dernier sera d’ailleurs pr\u00e9sent \u00e0 la journ\u00e9e d’information sur les maladies vectorielles \u00e0 tiques et infections froides programm\u00e9es \u00e0 Strasbourg le 19 juin 2016. Il sera accompagn\u00e9 de nombreux autres intervenants r\u00e9unis au Palais des Congr\u00e8s (contact, renseignements et inscriptions : contact@associationlymesansfrontieres.com).<\/p>\nRetrouvez le Lyme Protest 2016 sur le site de Lyme Sans Fronti\u00e8res : <a href=\"http:\/\/www.associationlymesansfrontieres.com\/lyme-protest-28-mai-2016\/\" target=\"_blank\" rel=\"noopener\">http:\/\/www.associationlymesansfrontieres.com\/lyme-protest-28-mai-2016\/<\/a><\/p>\n\n","protected":false},"excerpt":{"rendered":"Manque de fiabilit\u00e9 des tests de d\u00e9pistage, manque de suivi des malades, manque de pr\u00e9vention sur les territoires les plus […]<\/p>\n","protected":false},"author":42,"featured_media":19447,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[20,12,18],"tags":[2191,2083,2192],"acf":[],"yoast_head":"\n<title>Lyme sans Fronti\u00e8res : le combat ne fait que commencer - Gerardmer Info<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Lyme sans Fronti\u00e8res : le combat ne fait que commencer - 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