Une journ\u00e9e pour Jade, atteinte de leucodystrophie - Epinal Info<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Une journ\u00e9e pour Jade, atteinte de leucodystrophie - Epinal Info\" \/>\n<meta property=\"og:description\" content=\"Dimanche dernier une journ\u00e9e \u00e9tait organis\u00e9e \u00e0 Vincey pour Jade, une petite fille de sept ans, atteinte de leucodystrophie. 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$\"(photographie$ <\/a>

(photographie Laurent Fallourd)<\/p><\/div>\n

Dimanche dernier une journ\u00e9e \u00e9tait organis\u00e9e \u00e0 Vincey pour Jade, une petite fille de sept ans, atteinte de leucodystrophie. C\u2019est sa maman qui a organis\u00e9 la manifestation pour r\u00e9colter des fonds pour l\u2019association ELA qui lutte contre la maladie d\u00e9g\u00e9n\u00e9rative. \u00a0<\/strong><\/p>\n

Pour cette journ\u00e9e festive, des ballons roses et blancs \u00e9taient l\u00e2ch\u00e9s, un atelier maquillage \u00e9tait propos\u00e9 ainsi que des balades \u00e0 poney ou en Ferrari. La danse \u00e9tait aussi au rendez-vous avec de la country et les plus courageux se sont lanc\u00e9s dans la course \u00e0 pied propos\u00e9e par les sapeurs-pompiers.<\/p>\n

Les dons de cette journ\u00e9e seront revers\u00e9s pour la recherche.<\/p>\n

C.K.N.<\/p>\n","protected":false},"excerpt":{"rendered":"

Dimanche dernier une journ\u00e9e \u00e9tait organis\u00e9e \u00e0 Vincey pour Jade, une petite fille de sept ans, atteinte de leucodystrophie. 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