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{"id":46540,"date":"2015-05-26T14:15:39","date_gmt":"2015-05-26T12:15:39","guid":{"rendered":"https:\/\/vi.si-developpement.fr\/epinalinfo\/2015\/05\/temoignage-ce-lorrain-fait-du-ski-malgre-sa-sclerose-en-plaques\/"},"modified":"2015-05-26T14:15:39","modified_gmt":"2015-05-26T12:15:39","slug":"temoignage-ce-lorrain-fait-du-ski-malgre-sa-sclerose-en-plaques","status":"publish","type":"post","link":"https:\/\/vi.si-developpement.fr\/epinalinfo\/2015\/05\/temoignage-ce-lorrain-fait-du-ski-malgre-sa-sclerose-en-plaques\/","title":{"rendered":"T\u00e9moignage – Ce Lorrain fait du ski malgr\u00e9 sa scl\u00e9rose en plaques"},"content":{"rendered":" Philippe Nieff est atteint de scl\u00e9rose en plaques depuis pr\u00e8s de 25 ans\n

Philippe Nieff, un patient Lorrain atteint de scl\u00e9rose en plaques n\u2019a pas l\u2019intention de manquer la Journ\u00e9e mondiale de la SEP. Ce mercredi, la mobilisation lorraine aura lieu \u00e0 Nancy, placette St S\u00e9bastien, et m\u00ealera dons, informations et animations artistiques et sportives.<\/strong><\/p>\n

Cela fait pr\u00e8s de 25 ans<\/strong> que Philippe Nieff est atteint de scl\u00e9rose en plaques<\/strong>. \u00ab\u00a0A l\u2019\u00e9poque j\u2019ai eu des analyses pouss\u00e9es, mais pendant pr\u00e8s de 20 ans je n\u2019ai jamais rien d\u00e9velopp\u00e9.\u00a0\u00bb<\/em> explique-t-il. Cela fait maintenant 5 ans que sa sant\u00e9 s\u2019est d\u00e9grad\u00e9e<\/strong>. \u00ab\u00a0J\u2019ai perdu la vue d\u2019un \u0153il<\/strong> et je ne peux plus marcher<\/strong>. Je suis tr\u00e8s fatigu\u00e9<\/strong> tous les jours et j\u2019ai des douleurs<\/strong> partout.\u00a0\u00bb<\/em> t\u00e9moigne Philippe Nieff.<\/p>\n

Mais il ne se laisse pas abattre. De nature plut\u00f4t gaie et positif il fait parti du Club Vosgien<\/strong> car avant sa maladie il aimait marcher. Un jour pendant une randonn\u00e9e nature avec son club sa jambe s\u2019est paralys\u00e9e. Il a alors test\u00e9 un nouveau traitement, aujourd\u2019hui il ne peut plus marcher, mais il a trouv\u00e9 des solutions pour continuer ses balades. Il a achet\u00e9 un scooter \u00e9lectrique<\/strong> qu\u2019il emm\u00e8ne partout\u00a0: dans le sable, le long de la voie verte, en for\u00eat\u2026<\/p>\n

Il fait aussi parti de l\u2019association Canne \u00e0 SEP<\/strong> de Lun\u00e9ville tenue par Sylvie Seban, atteinte elle-m\u00eame de scl\u00e9rose en plaques. Il a d\u00e9couvert l\u2019association un peu par hasard. \u00ab\u00a0Gr\u00e2ce \u00e0 l\u2019association, je fais de nombreuses activit\u00e9s. Tous les ans on a une sortie au ski.<\/strong> On est dans un si\u00e8ge handicap\u00e9, mais on a l\u2019impression de faire du ski. On ne pense plus aux douleurs.\u00a0\u00bb<\/em> assure-t-il. Autre activit\u00e9\u00a0: le th\u00e9\u00e2tre. \u00ab\u00a0Du moment qu\u2019on joue, on est heureux, on ne pense plus \u00e0 rien.\u00a0\u00bb <\/em>La pratique sportive r\u00e9guli\u00e8re est b\u00e9n\u00e9fique pour les personnes atteintes de SEP.<\/p>\n

<\/iframe><\/p>\nUne journ\u00e9e pour sensibiliser le grand public<\/strong><\/span><\/p>\nCr\u00e9\u00e9e en 2009, la Journ\u00e9e Mondiale de la SEP a pour but de sensibiliser le grand public<\/strong> en organisant une journ\u00e9e d\u2019action pour et aux c\u00f4t\u00e9s des personnes atteintes de scl\u00e9rose en plaques (SEP) chaque dernier mercredi du mois de mai.<\/p>\nSouvent m\u00e9connue, cette maladie du syst\u00e8me nerveux central<\/strong> affecte pourtant 100 000 personnes en France, dont plus de 5 000 personnes en Lorraine<\/strong>.<\/p>\nToute la journ\u00e9e, le r\u00e9seau de sant\u00e9 ville-h\u00f4pital LORSEP et les associations de lutte contre la SEP actifs en Lorraine et en Haute-Marne – LFSEP, APF, ARSEP, Canne \u00e0 SEP et Espoir – pr\u00e9senteront leurs actions aupr\u00e8s des patients et de leurs proches mais aussi et surtout au grand public tout au long de la journ\u00e9e.<\/p>\nC\u00f4t\u00e9 sport, une patiente escrimeuse animera des d\u00e9monstrations participatives<\/strong>. Le mur d\u2019initiation \u00e0 l\u2019escalade<\/strong> anim\u00e9 par l\u2019ASPTT ainsi qu\u2019un ch\u00e2teau gonflable<\/strong> permettront de \u00ab bouger \u00bb pour la SEP. C\u00f4t\u00e9 art, l\u2019\u00c9cole de Musique<\/strong> proposera interludes musicaux et animations d\u2019art de rue<\/strong>. Une fresque participative<\/strong> sera en acc\u00e8s libre. La journ\u00e9e sera immortalis\u00e9e par des \u00e9l\u00e8ves de l\u2019IECA qui en r\u00e9aliseront un film<\/strong>.<\/p>\nC.K.N.<\/p>\n","protected":false},"excerpt":{"rendered":"Philippe Nieff, un patient Lorrain atteint de scl\u00e9rose en plaques n\u2019a pas l\u2019intention de manquer la Journ\u00e9e mondiale de la […]<\/p>\n","protected":false},"author":52,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[729,14,10,5],"tags":[],"acf":[],"yoast_head":"\n<title>T\u00e9moignage - Ce Lorrain fait du ski malgr\u00e9 sa scl\u00e9rose en plaques - Epinal Info<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"T\u00e9moignage - Ce Lorrain fait du ski malgr\u00e9 sa scl\u00e9rose en plaques - 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